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PS: Cancer still sucks.....journal entry 11/8/2017

Lynch syndrome, often called hereditary nonpolyposis colorectal cancer (HNPCC), is an INHERITED disorder that increases the risk of many types of cancer, particularly cancers of the colon (large intestine) and rectum, which are collectively referred to as colorectal cancer. People with Lynch syndrome also have an increased risk of cancers of the stomach, small intestine, liver, gallbladder ducts, upper urinary tract, brain, and skin. Additionally, women with this disorder have a high risk of cancer of the ovaries and lining of the uterus (the endometrium). 

Inherited is a key word here, yet neither of my biological parents gave this to me.  Some people just get to be first in the great world of "front of the line must be best", Right?  I began my over achieving ways early getting to change my birth name that started with a P to a B when I was adopted by my father and then not to be outdone I moved to the front of the alphabet with A when I married.  

Fast forward a few years and I am in a room hearing the geneticist telling my husband and I that our kids had a 50% chance of inheriting this DNA hiccup and the room went dark as my vision narrowed and I fought back passing out.  No no no no my mind screamed!  I do everything to give my kids the BEST and now I have no choice in the matter of this crap?!  

We returned to our three beautiful kids armed with all the right things to say.  "Be watchful, be monitored, get tested, be proactive, don't let any doctor overlook or tell you a symptom is nothing, know your bodies, you live in them"!  

Our first born immediately said "well I am your clone so I know I will have it"!  Little did we know then that indeed she would be tested, did carry it and is now facing her first and we pray last surgery, but she got a whole lot more than that from the gene pool she was created from.  She is strong, she is loving, she is kind, she works harder than the average human at all things, she overcomes and learns from anything in her way and she is the perfect wife to her husband and Mom to her baby boys. 

I often think, if I had known I had this horrific gene would I have made the choice not to have children?  I hate it, I hate it, I hate it and yet there is so much other stuff in life to love.

I would not change having my 3 amazing kids, I will stay first in line (mind you this is figurative as I am not alone in this) if it means I can pave the way for them and others that will need to follow me down this path and one by one we will make a change so the future generations can find joy, healing and less bumps along the way.

I say "live each day like it's your best" my kiddo chooses "faith over fear".  Whatever your battle, whatever your bump in the road find a way to get over, around or through it to a new day of hope, laughter and joy on this little journey we call life.  PS, cancer still sucks!

 

 

Cherie sent you a prayer.
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Faith over fear is a great one! My greatest fear is one of my 3 will have to face cancer. Lots of hugs virtually
Hi Larissa, What a story and what a situation. Finding out about Lynch Syndrome was the secret. Later than you might have liked? Perhaps. But never, ever, ever too late. You learning from the Geneticist led to the surgeries which are likely to save daughter's life.
Knowledge is power.
Best wishes to you and your kiddo's!
Bill
Wonderful!(sarcasm...). My insurance company refused to cover genetic testing when the doctor ordered it. So I'm in the dark. After reading your post I may just have to pay out-of-pocket myself as I have 2 daughters.
I am so so sorry. Insurance makes no sense as being armed with this information would save them in the long run for early intervention and treatment typically costs far less than later ☹️ I pray that while you take the steps to give your daughter's answers you will get the great news that you will not pass this on to them.
Larissa, please know that I send all good thoughts and prayers for your daughter, her husband, those precious boys, you and your husband, and your entire family. Love you, my friend.
Hugs and prayers!!
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Vital Info

Posts

August 29, 2009

California

Cancer Info

Colon and Rectal Cancer

September 28, 2004

Stage 3C

4.1 - 5.0 cm

Yes

That affects more than just me.

That I have more strength than I ever imagined.

left with mild neuropothy, balance and memory issues

Cedar Sinai in Beverly Hills California

Exercise!!!!

Write things down, play memory games and games that make you think quickly

Since the first and 1 recurrence I have lived no evidence of disease

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